Lily is still awake. She’s not feeling great and has been off. She’s impossible to distract, crying unless she’s being held and generally just messy. It’s been, what we call, in this house, a 2 parent day – where it is literally impossible to put her down for the fear of her vomiting again because …
Tomorrow Came
And of course, tomorrow was different. Hours after posting my last entry, I had a conversation with Jess where I asked her to remind me that when I’m struggling like that, that the best thing I can do for myself is to take 15 minutes to just sit and write it out. Thoughts that are …
Into the New Year
The miracle of Christmas may just be that we made it through December. Between our big cardiology visit, Lily’s birthday, a giant ice storm that made our power go away, Christmas and New Years, I’m honestly just a little happy that we are into January and a fresh start at a fresh year. Don’t take …
I’m Still Standing
In this case, a picture truly is worth a thousand words…. Beyond the absolute mess of our house (full on renovation mode, with everything from the basement now taking up residence in our living room/storage container), all I see is this: our incredible, amazing, awe inspiring, reminds me of what a miracle she is everyday, …
One Year Later
In our first year of life with Lily, we celebrated every anniversary we could think of: the day we got the phone call, the day we met her, the day she had her first overnight visit, the day she came home for good, the day of her heart surgery, the day of her cardiac arrest. …
Those Genetics…
A mom post tonight…. It’s become part of our routine to see Lily’s birth parents every few months. We really enjoy seeing them: watching the expression on their faces when they see how much she has grown and what she can do. There is something immensely fulfilling about watching her birth dad hold her for …