giggleandhugs

Day 2 went very well for Lily, although it ended up a little bit of a rough(ish) night.   Children with Down Syndrome are apparently hard to sedate so she kept waking up and was obviously in pain.  So the night nurse had to keep giving her extra sedation and morphine to keep her nice …

Today was the longest day of my short little life.  After bothering me late last night to have that silly bath, the mom’s woke me up at 5:30am this morning, so that I could have some water, change my diaper, put on clean sleepers and then they pulled my tube out.  It was all so …

I`m not really liking the mom`s right now.  I had a really long day today: first I woke up around 5am because in my sleep I managed to pull the tube out of my nose, but not all of the way out so it was really uncomfortable.  Mama C woke up and pulled the rest …

My datebook is very busy for the rest of this week.  Last night I had a wonderful surprise when my Theresa, Jason and Joey all came over for dinner.    Joey loves me so much and just kept trying to hug me and squeeze me – at one point, I was sitting on his belly and …

You know, a while ago I predicted that I was going to be very popular.  I had no idea how true that was going to be!! Yesterday morning, the mom’s were fussing all about – taking long showers, putting on make-up (well Mama C was) and then they fed me a little early and put …

I  realized today that I am a very lucky girl.   Most kids in the world are lucky enough to have 2 parents who really love them and that’s really amazing, but in my tiny little world, I get 4 parents who love me more than anything. It’s been a long time since I’ve seen my …