I know that some of you may be under the impression that because I’m a little girl, that my life is pretty easy. But let me tell you, you can not come as far as I have in the last year without working a lot! Sometimes the work is kind of fun, like when Janet, my vision …
Becoming a Girl
A mom post tonight…. I was having a conversation with Lily’s OT this week while we were having a joint visit with our physiotherapist – a special treat. We were talking about how, when learning new skills, it has taken Lily a long time to figure things. She would plateau for ages but then one …
Sweet Potatos and Joey`s Birthday
So, a little while ago, I told you guys that I had this cold. It was super annoying because I couldn’t really breathe and I was all sniffly and gross. On top of that, it’s already hard for me to swallow sometimes (because of my low muscle tone) that when I’m sick it makes it …
Merrily We Roll Along
The mom’s and I are doing really well these days at just rolling with the punches. When we were first getting used to all my little quirks, it was easy for the mom’s to become overwhelmed when I hit a little bump in the road, but lately I’ve noticed that they seem to be better …
Rubber Ball Life
If I have learned one thing in my short but dramatic life, it’s that life really does work like a rubber ball – it bounces up and down between happy things and sad things before you can even realize what’s going on. I know the mom’s are wishing lately that there would either be a …
A Regular Kind of Week
My life has suddenly become very busy. On Wednesday mornings I go to a sign language class and on Thursday mornings I go to a music class. Both of these are at Surrey Place, which is close to Sick Kids but just a place where kids who are like me, mostly with Down Syndrome but …