Tags archives: Therapy

  • Lost

  • "The truth is, there are lots of times where I feel completely lost in how to feel about all of this, in how to prepare, in how to parent, in how to process experiences, in how to advocate." – Kelle Hampton There are some people who think we should have this all figured out; that because we chose adoption, because we [...]
  • Great Big Huge Leaps

  • The last couple of weeks have shown some huge developments in Lily's developmental skills.  One of our new therapists from Holland Bloorview has just been this incredible ray of sunshine in our lives and it would be easy to chart Lily's developments alongside Catherine's visits.  We've been lucky to have some incredibl[...]
  • Lily's New Wheels

  • There are certain specialists we see at Sick Kids that leave us less stressed than others.  I like to think of these as "maintenance" appointments - doctor's we need to see because there was an issue in the past or things that are just part of life and require some follow-up: our regular pediatrician, opthamology and o[...]
  • The Flu, the Army and A Little Extra Physio

  • Do you know what I'm not such a big fan of? Throwing up.  I mean, technically I do it all of the time, I'm kind of awesome at it, but when I'm not expecting it and it happens all night when I'm supposed to be sleeping I really really hate it.  The mom's called it a "bug", which is a really horrible name.  I've seen bug[...]
  • New Year and New Adventures

  • I hope you haven't missed me too much.  I've been very busy blossoming into a new little girl over the past few weeks and it's taken up most of my time and energy. Guys, did you know that you could reach for things? That you don't just have to wait for one of the mom's to get off the couch and bring the toy back to yo[...]
  • The Lily Pond

  • I'm guilty.  It's totally my fault.  The mom's have been bugging me to write a new post for ages and ages, but they wouldn't accept my excuse of not knowing how to type! So, here I am, back again to fill you in on all of the going-on's in my very busy life.  I promise that from now on, these posts will happen in a far[...]
  • A Stand Up Day

  • I know that some of you may be under the impression that because I'm a little girl, that my life is pretty easy.  But let me tell you, you can not come as far as I have in the last year without working a lot! Sometimes the work is kind of fun, like when Janet, my vision worker comes.  She always brings new toy ideas fo[...]
  • Becoming a Girl

  • A mom post tonight.... I was having a conversation with Lily's OT this week while we were having a joint visit with our physiotherapist - a special treat.  We were talking about how, when learning new skills, it has taken Lily a long time to figure things.  She would plateau for ages but then one day it would just cli[...]
  • Sweet Potatos and Joey`s Birthday

  • So, a little while ago, I told you guys that I had this cold.  It was super annoying because I couldn't really breathe and I was all sniffly and gross.  On top of that, it's already hard for me to swallow sometimes (because of my low muscle tone) that when I'm sick it makes it even harder.  This was especially frustrat[...]
  • Merrily We Roll Along

  • The mom's and I are doing really well these days at just rolling with the punches.  When we were first getting used to all my little quirks, it was easy for the mom's to become overwhelmed when I hit a little bump in the road, but lately I've noticed that they seem to be better at watching how things unfold before they[...]
  • Rubber Ball Life

  • If I have learned one thing in my short but dramatic life, it's that life really does work like a rubber ball - it bounces up and down between happy things and sad things before you can even realize what's going on.  I know the mom's are wishing lately that there would either be a few more happy things or even just tha[...]
  • A Regular Kind of Week

  • My life has suddenly become very busy.  On Wednesday mornings I go to a sign language class and on Thursday mornings I go to a music class.  Both of these are at Surrey Place, which is close to Sick Kids but just a place where kids who are like me, mostly with Down Syndrome but some with some other quirks too, can go a[...]