Tags archives: Moments

  • I Want...

  • Some years it really is easier and then, out of what feels like total left field, it's a bad year again. I've written about this week before and how my mind is completely distracted, but I don't think I've talked about the weight of it, the physical ache, the near-constant feel of tears behind my eyes. The want to just[...]
  • To Witness Love

  • You might think, from the title, that I'm about to tell you how incredible it was to witness the birth of my new niece, Penelope, this week.  You're not entirely wrong.  Being allowed to be in that room, to share this moment with my sister - my other half - is beyond anything I can put into words.  To be one of the fir[...]
  • Sick Kids Mom PTSD

  • We're back home and on the mend. It was a bit of a tough transistion, getting nursing care arranged for both at home and at school and so Lily was away from school longer than we had hoped, but she went back late last week and has been as happy as they come ever since. She's had some rough moments where she has to ride[...]
  • Be A Goal Digger

  • Next week will be the culmination of the last few months for me.  There have been things going on behind the scenes - nothing with Lily, just some time spent reflecting on how to become the person that I see in myself versus the person that I portray to the rest of the world.  It's taken a lot of time, a lot of soul se[...]
  • Keep Love Alive

  • "T'is the season when the saints can employ us to spread the news about peace and to keep love alive." 10 points to you if you knew that was from A Muppets Christmas Carol, but another 10 points if you know that for all of the Christmas songs and carols out there, this is the one line that always takes my breath away.[...]
  • The Day of Thinks

  • Some part of me thought that we wouldn't get here.  I wouldn't let myself actually look this far into the future and see this day.  This 5 year old girl standing before me, strong and growing and shining with light, I didn't think I'd see her. It's given me new hope, if we can reach 5, which seemed so far away and i[...]
  • Pure

  • There is a stigma to special needs adoptions, but it's not what you may think.  The stigma belongs to the birth parents, labelled as selfish, heartless or weak. It's an easy assumption to make, a way to blame.  When we first got the call about Lily, those were the thoughts that ran through my head.  What kind of person[...]
  • We're On the Next Chapter

  • The last of my guest voices is an incredible photographer, Kelly Searle, who I'm still hoping will decide to make an impromptu trip to Toronto one day when it just happens to be gorgeous outside so that I can use her incredible talent to capture some new photos of Lily, but I digress.  Kelly is also the mamma to Dolly,[...]
  • Brotherly Love

  • Down Syndrome Awareness Month has come to an end, but luckily here in Canada, the first week of November is Down Syndrome Awareness week.  So while a cold that has kicked my butt kept me from finishing my project for 31 for 21 project for this year, I'm happy to bring it into November as well. As you know, I've been[...]
  • Jax's World

  • Shortly after Lily came home, Jess was talking to a woman who said to her, "I've heard about people like you."  A little taken aback, for a moment Jess wasn't entirely sure which of the "like you" categories the woman was referring to - lesbians or parents who had chosen a child with Down Syndrome.  The woman was refer[...]
  • "I Just Want to Be His Mama"

  • The thing about the thread that binds parents of children with Down syndrome is that, like all thread, it can sometimes seem invisible.  There are moments in time when parenting our children can sometimes feel lonely.  This doesn't mean that we don't have amazing support systems from our family and friends but there ar[...]
  • Meeting Levi

  • Once Lily was officially home with us, we began taking her to weekly sign and music programs aimed specifically for parents and children with special needs.  The majority of children attending the program along with us had a diagnosis of Down Syndrome, so it felt a little bit like walking into our own special clubhouse[...]