I’m not really talking about Down syndrome today. Today is my dad’s 85th birthday. 85 years. It’s pretty amazing. I’m so much like my mother that I sometimes forget about how much I get from my dad as well: my love of the royal family, how I tap my fingers to the rythym of any …
The last couple of weeks have shown some huge developments in Lily’s developmental skills. One of our new therapists from Holland Bloorview has just been this incredible ray of sunshine in our lives and it would be easy to chart Lily’s developments alongside Catherine’s visits. We’ve been lucky to have some incredible therapists working with …
If, fifteen years ago, you had told me that I would be able to sit in a room, reading medical records and understand the following sentence, “loss of grey-white differentiation consistent with Hypoxic Ischemic Encephalopthy; insult occurring in the bilateral parietal, temporal, occipital lobes and occurring the the posterior frontal lobe along the vertex”, I …
In this case, a picture truly is worth a thousand words…. Beyond the absolute mess of our house (full on renovation mode, with everything from the basement now taking up residence in our living room/storage container), all I see is this: our incredible, amazing, awe inspiring, reminds me of what a miracle she is everyday, …
I hope you haven’t missed me too much. I’ve been very busy blossoming into a new little girl over the past few weeks and it’s taken up most of my time and energy. Guys, did you know that you could reach for things? That you don’t just have to wait for one of the mom’s …
A mom post tonight…. Although we try not to dwell on it too much, there are certainly some aspects of Lily’s diagnosis(s) that can be challenging as her parents. It can be really hard to see her work so hard and not make the gains that you want her to be making. It can get …