Tags archives: Milestones

  • Lost

  • "The truth is, there are lots of times where I feel completely lost in how to feel about all of this, in how to prepare, in how to parent, in how to process experiences, in how to advocate." – Kelle Hampton There are some people who think we should have this all figured out; that because we chose adoption, because we [...]
  • Worried Voice vs. Mamma Voice

  • So, Lily  has had a walker since she began junior kindergarten last year. We've had some success with it, mostly because the staff at her school are incredible and just keep pushing her.  She would take a few steps but for the most part would just use both feet at the same time to push herself forward.  She could only [...]
  • 31 for 21: Days 2, 3 & 4

  • This started off as just a post for day 2, but became a work in progress along the way :) While my interactions with Jordan helped me begin to understand that our differences were incredibly small, I would be lying if I said that they changed everything about what I thought about disabilities.  While I learned the l[...]
  • A Dirty Shoe

  • "It looks like she may have stepped in gum, or play-doh." We've been harbouring a little secret around here.  Our little bum-scooting maniac is showing signs that she's no longer content with just having access to the things directly in front of her on the floor.  She's decided that the things on the other side of t[...]
  • #500 for 5

  • 5 years.  Since just after that horrible day 4 years ago, the goal has been 5 years.  "Take her home and grow her," they told us, "if the day comes when she needs a heart-lung transplant, the success rate improves dramatically once a child is 5."  It seemed impossible.  5 years felt more like a lifetime, especially whe[...]
  • Saying Thank You

  • On July 14, 2011 at 7:30am, 2 men became our family’s heroes. From that moment on it seemed incredible to me that we had barely spoken to them, didn’t know their names and never had the chance to say thank you. How was it possible that there were people just out there that had played such a huge role in our lives and w[...]
  • Happy Birthday Young Man

  • I'm not really talking about Down syndrome today. Today is my dad's 85th birthday. 85 years. It's pretty amazing. I'm so much like my mother that I sometimes forget about how much I get from my dad as well: my love of the royal family, how I tap my fingers to the rythym of any song that's playing, how I get s[...]
  • Great Big Huge Leaps

  • The last couple of weeks have shown some huge developments in Lily's developmental skills.  One of our new therapists from Holland Bloorview has just been this incredible ray of sunshine in our lives and it would be easy to chart Lily's developments alongside Catherine's visits.  We've been lucky to have some incredibl[...]
  • Fierce

  • If, fifteen years ago, you had told me that I would be able to sit in a room, reading medical records and understand the following sentence, "loss of grey-white differentiation consistent with Hypoxic Ischemic Encephalopthy; insult occurring in the bilateral parietal, temporal, occipital lobes and occurring the the pos[...]
  • I'm Still Standing

  • In this case, a picture truly is worth a thousand words.... Beyond the absolute mess of our house (full on renovation mode, with everything from the basement now taking up residence in our living room/storage container), all I see is this: our incredible, amazing, awe inspiring, reminds me of what a miracle she is e[...]
  • New Year and New Adventures

  • I hope you haven't missed me too much.  I've been very busy blossoming into a new little girl over the past few weeks and it's taken up most of my time and energy. Guys, did you know that you could reach for things? That you don't just have to wait for one of the mom's to get off the couch and bring the toy back to yo[...]
  • Cookie Monster....I mean, Master....

  • A mom post tonight.... Although we try not to dwell on it too much, there are certainly some aspects of Lily's diagnosis(s) that can be challenging as her parents.  It can be really hard to see her work so hard and not make the gains that you want her to be making.  It can get frustrating when you finally reach a long[...]