Jax’s World

Shortly after Lily came home, Jess was talking to a woman who said to her, “I’ve heard about people like you.”  A little taken aback, for a moment Jess wasn’t entirely sure which of the “like you” categories the woman was referring to – lesbians or parents who had chosen a child with Down Syndrome. …

“I Just Want to Be His Mama”

The thing about the thread that binds parents of children with Down syndrome is that, like all thread, it can sometimes seem invisible.  There are moments in time when parenting our children can sometimes feel lonely.  This doesn’t mean that we don’t have amazing support systems from our family and friends but there are days …

31 for 21: The Rest of the Journey

We took some time after Paxton to just settle for a bit.  After all of the rushing, we didn’t want to keep pushing ahead and were obviously scared about more heartbreak.  We needed the time to reflect and figure out what to do differently the next time.  We knew that there would be a next …

31 for 21: Days 5 & 6

12 months after camp ended, we were back again.  It was a completely different experience leading up to our time away; I felt like a teenager who aches to be back at summer camp all through the school year because that’s where she really belongs.  I couldn’t wait to get back and see everyone and …

31 for 21: Days 2, 3 & 4

This started off as just a post for day 2, but became a work in progress along the way 🙂 While my interactions with Jordan helped me begin to understand that our differences were incredibly small, I would be lying if I said that they changed everything about what I thought about disabilities.  While I …

A Dirty Shoe

“It looks like she may have stepped in gum, or play-doh.” We’ve been harbouring a little secret around here.  Our little bum-scooting maniac is showing signs that she’s no longer content with just having access to the things directly in front of her on the floor.  She’s decided that the things on the other side …