Tags archives: Friends

  • Holding Tight to the Love

  • One of the thoughts that I push aside most often is how Lily's relationships will change as her friends get older.  We just spent a wonderful weekend away with some friends and one of my favourite parts was watching their son interact with Lily.  He has loved her since the minute she entered our lives and while so far [...]
  • Keep Love Alive

  • "T'is the season when the saints can employ us to spread the news about peace and to keep love alive." 10 points to you if you knew that was from A Muppets Christmas Carol, but another 10 points if you know that for all of the Christmas songs and carols out there, this is the one line that always takes my breath away.[...]
  • We're On the Next Chapter

  • The last of my guest voices is an incredible photographer, Kelly Searle, who I'm still hoping will decide to make an impromptu trip to Toronto one day when it just happens to be gorgeous outside so that I can use her incredible talent to capture some new photos of Lily, but I digress.  Kelly is also the mamma to Dolly,[...]
  • Brotherly Love

  • Down Syndrome Awareness Month has come to an end, but luckily here in Canada, the first week of November is Down Syndrome Awareness week.  So while a cold that has kicked my butt kept me from finishing my project for 31 for 21 project for this year, I'm happy to bring it into November as well. As you know, I've been[...]
  • Jax's World

  • Shortly after Lily came home, Jess was talking to a woman who said to her, "I've heard about people like you."  A little taken aback, for a moment Jess wasn't entirely sure which of the "like you" categories the woman was referring to - lesbians or parents who had chosen a child with Down Syndrome.  The woman was refer[...]
  • "I Just Want to Be His Mama"

  • The thing about the thread that binds parents of children with Down syndrome is that, like all thread, it can sometimes seem invisible.  There are moments in time when parenting our children can sometimes feel lonely.  This doesn't mean that we don't have amazing support systems from our family and friends but there ar[...]
  • Meeting Levi

  • Once Lily was officially home with us, we began taking her to weekly sign and music programs aimed specifically for parents and children with special needs.  The majority of children attending the program along with us had a diagnosis of Down Syndrome, so it felt a little bit like walking into our own special clubhouse[...]
  • 31 for 21: Days 2, 3 & 4

  • This started off as just a post for day 2, but became a work in progress along the way :) While my interactions with Jordan helped me begin to understand that our differences were incredibly small, I would be lying if I said that they changed everything about what I thought about disabilities.  While I learned the l[...]
  • #500 for 5

  • 5 years.  Since just after that horrible day 4 years ago, the goal has been 5 years.  "Take her home and grow her," they told us, "if the day comes when she needs a heart-lung transplant, the success rate improves dramatically once a child is 5."  It seemed impossible.  5 years felt more like a lifetime, especially whe[...]
  • Smile a Little More - or how Facebook Changed My Day

  • It's been a long couple of days.  I've been hit with bout of insomnia like I've never experienced before.  I have insomnia often, but usually it just means that regardless of what time I crawl into bed, it's 2 or 3am before I'm finally able to crash out, but this time was different and I've had no sleep at all.  The fi[...]
  • Torn

  • I was getting all ready to write a post about how we've been watching in amazement as Lily becomes this smiley, giggly little girl; how she is overcoming her aversion to using her hands with so much speed that we can barely keep up with her; how I no longer feel slighted when she stops doing whatever cute thing she was[...]
  • A Camp Away from Home

  • Have we ever known Lily to just let a happy event happen without throwing in her own little wrench? We went to Disney World and she pulled out her own g-tube for the first time, this time she had a playground donated and she got an infection around her stoma!  We actually felt really bad for her - the entire site was s[...]