Tags archives: Epilepsy

  • #500 for 5

  • 5 years.  Since just after that horrible day 4 years ago, the goal has been 5 years.  "Take her home and grow her," they told us, "if the day comes when she needs a heart-lung transplant, the success rate improves dramatically once a child is 5."  It seemed impossible.  5 years felt more like a lifetime, especially whe[...]
  • Parties and Brains and Zombies...oh my!

  • We're having a quiet day here at home.  It's raining outside and the mom's say that makes people sleepy, plus I think I have this other tooth coming through and it's making me slightly miserable.  I'm thinking about having another nap, but at the same time it's kind of fun to watch the mom's get so amused by me refusin[...]
  • Merrily We Roll Along

  • The mom's and I are doing really well these days at just rolling with the punches.  When we were first getting used to all my little quirks, it was easy for the mom's to become overwhelmed when I hit a little bump in the road, but lately I've noticed that they seem to be better at watching how things unfold before they[...]
  • Rubber Ball Life

  • If I have learned one thing in my short but dramatic life, it's that life really does work like a rubber ball - it bounces up and down between happy things and sad things before you can even realize what's going on.  I know the mom's are wishing lately that there would either be a few more happy things or even just tha[...]
  • Much Needed Sunshine

  • While my tiny giggle hasn't turned into full out squeals of laughter yet, I have decided that it was time the real me, the smiley, happy, always content, can't stop squirming me, made a grand reappearance.  After December being a bit of a wash out with colds and probably some funny brain stuff, and January being awful [...]
  • Introducing....

  • Today the mom's decided that there had been enough being not so happy about all this seizure stuff going on.  I have to admit that it wasn't a great weekend.  The medication has been making me very tired (which the mom's don't seem to mind sooo much because apparently I'm into a good "routine").  But I've stopped smili[...]
  • Silly brain

  • I've had a very eventful time lately.  The mom's asked me not to talk about it until now because we didn't really know for sure what was going on, but now that we have a better idea I can tell you all about it. A few weeks ago, the mom's started noticing that I was having these little muscle spasms.  It would mostly h[...]