We’ve officially made it to the end of the 3rd week of school. I had hoped to update before this, but there have been a few other things occupying my mind and time, but I’m hoping that with this update all of these things will start coming together. I would like to be able to …
The last few days have felt like an incredible roller coaster, but the good kind for once: the dips have lead right into these amazing highs that have sent shivers up our spines with hopefulness and finally culminated in today. It was Lily’s first day of Junior Kindergarten. It wasn’t perfect, not by a long …
Have we ever known Lily to just let a happy event happen without throwing in her own little wrench? We went to Disney World and she pulled out her own g-tube for the first time, this time she had a playground donated and she got an infection around her stoma! We actually felt really bad …
There are absolutely no words to describe the day we had…but of course I’m going to try. Today was Lily’s playground build – an incredible gift granted to her by the Million Dollar Smiles foundation and sponsored by the Bank of Montreal. The volunteers were all in place by 9am this morning, and after a …
I’ve been taking part in a Summer Disability Blog Hop Series. The entry I wrote about the challenges we face when Lily is sick was part of that. This weeks post is asking about the Comforts and Connections that we make and as I started to write a new post, I realized that I had …
I find one of the most difficult challenges about parenting a child with special needs is trying to find a work/life balance in a world where these 2 things don’t always want to play nicely together. I’m incredibly fortunate that my job offers flexible hours and it is a benefit that I value over any …