Tags archives: Down syndrome

  • Lost

  • "The truth is, there are lots of times where I feel completely lost in how to feel about all of this, in how to prepare, in how to parent, in how to process experiences, in how to advocate." – Kelle Hampton There are some people who think we should have this all figured out; that because we chose adoption, because we [...]
  • Holding Tight to the Love

  • One of the thoughts that I push aside most often is how Lily's relationships will change as her friends get older.  We just spent a wonderful weekend away with some friends and one of my favourite parts was watching their son interact with Lily.  He has loved her since the minute she entered our lives and while so far [...]
  • Keep Love Alive

  • "T'is the season when the saints can employ us to spread the news about peace and to keep love alive." 10 points to you if you knew that was from A Muppets Christmas Carol, but another 10 points if you know that for all of the Christmas songs and carols out there, this is the one line that always takes my breath away.[...]
  • The Day of Thinks

  • Some part of me thought that we wouldn't get here.  I wouldn't let myself actually look this far into the future and see this day.  This 5 year old girl standing before me, strong and growing and shining with light, I didn't think I'd see her. It's given me new hope, if we can reach 5, which seemed so far away and i[...]
  • Worried Voice vs. Mamma Voice

  • So, Lily  has had a walker since she began junior kindergarten last year. We've had some success with it, mostly because the staff at her school are incredible and just keep pushing her.  She would take a few steps but for the most part would just use both feet at the same time to push herself forward.  She could only [...]
  • Pure

  • There is a stigma to special needs adoptions, but it's not what you may think.  The stigma belongs to the birth parents, labelled as selfish, heartless or weak. It's an easy assumption to make, a way to blame.  When we first got the call about Lily, those were the thoughts that ran through my head.  What kind of person[...]
  • We're On the Next Chapter

  • The last of my guest voices is an incredible photographer, Kelly Searle, who I'm still hoping will decide to make an impromptu trip to Toronto one day when it just happens to be gorgeous outside so that I can use her incredible talent to capture some new photos of Lily, but I digress.  Kelly is also the mamma to Dolly,[...]
  • Brotherly Love

  • Down Syndrome Awareness Month has come to an end, but luckily here in Canada, the first week of November is Down Syndrome Awareness week.  So while a cold that has kicked my butt kept me from finishing my project for 31 for 21 project for this year, I'm happy to bring it into November as well. As you know, I've been[...]
  • Jax's World

  • Shortly after Lily came home, Jess was talking to a woman who said to her, "I've heard about people like you."  A little taken aback, for a moment Jess wasn't entirely sure which of the "like you" categories the woman was referring to - lesbians or parents who had chosen a child with Down Syndrome.  The woman was refer[...]
  • "I Just Want to Be His Mama"

  • The thing about the thread that binds parents of children with Down syndrome is that, like all thread, it can sometimes seem invisible.  There are moments in time when parenting our children can sometimes feel lonely.  This doesn't mean that we don't have amazing support systems from our family and friends but there ar[...]
  • Meeting Levi

  • Once Lily was officially home with us, we began taking her to weekly sign and music programs aimed specifically for parents and children with special needs.  The majority of children attending the program along with us had a diagnosis of Down Syndrome, so it felt a little bit like walking into our own special clubhouse[...]
  • 31 for 21: The Rest of the Journey

  • We took some time after Paxton to just settle for a bit.  After all of the rushing, we didn't want to keep pushing ahead and were obviously scared about more heartbreak.  We needed the time to reflect and figure out what to do differently the next time.  We knew that there would be a next time, but we just needed some [...]