Tags archives: Challenges

  • Lost

  • "The truth is, there are lots of times where I feel completely lost in how to feel about all of this, in how to prepare, in how to parent, in how to process experiences, in how to advocate." – Kelle Hampton There are some people who think we should have this all figured out; that because we chose adoption, because we [...]
  • Holding Tight to the Love

  • One of the thoughts that I push aside most often is how Lily's relationships will change as her friends get older.  We just spent a wonderful weekend away with some friends and one of my favourite parts was watching their son interact with Lily.  He has loved her since the minute she entered our lives and while so far [...]
  • Be A Goal Digger

  • Next week will be the culmination of the last few months for me.  There have been things going on behind the scenes - nothing with Lily, just some time spent reflecting on how to become the person that I see in myself versus the person that I portray to the rest of the world.  It's taken a lot of time, a lot of soul se[...]
  • The Day of Thinks

  • Some part of me thought that we wouldn't get here.  I wouldn't let myself actually look this far into the future and see this day.  This 5 year old girl standing before me, strong and growing and shining with light, I didn't think I'd see her. It's given me new hope, if we can reach 5, which seemed so far away and i[...]
  • Worried Voice vs. Mamma Voice

  • So, Lily  has had a walker since she began junior kindergarten last year. We've had some success with it, mostly because the staff at her school are incredible and just keep pushing her.  She would take a few steps but for the most part would just use both feet at the same time to push herself forward.  She could only [...]
  • Brotherly Love

  • Down Syndrome Awareness Month has come to an end, but luckily here in Canada, the first week of November is Down Syndrome Awareness week.  So while a cold that has kicked my butt kept me from finishing my project for 31 for 21 project for this year, I'm happy to bring it into November as well. As you know, I've been[...]
  • 31 for 21: Days 5 & 6

  • 12 months after camp ended, we were back again.  It was a completely different experience leading up to our time away; I felt like a teenager who aches to be back at summer camp all through the school year because that's where she really belongs.  I couldn't wait to get back and see everyone and just immerse myself int[...]
  • 31 for 21: Days 2, 3 & 4

  • This started off as just a post for day 2, but became a work in progress along the way :) While my interactions with Jordan helped me begin to understand that our differences were incredibly small, I would be lying if I said that they changed everything about what I thought about disabilities.  While I learned the l[...]
  • A Dirty Shoe

  • "It looks like she may have stepped in gum, or play-doh." We've been harbouring a little secret around here.  Our little bum-scooting maniac is showing signs that she's no longer content with just having access to the things directly in front of her on the floor.  She's decided that the things on the other side of t[...]
  • #500 for 5

  • 5 years.  Since just after that horrible day 4 years ago, the goal has been 5 years.  "Take her home and grow her," they told us, "if the day comes when she needs a heart-lung transplant, the success rate improves dramatically once a child is 5."  It seemed impossible.  5 years felt more like a lifetime, especially whe[...]
  • Smile a Little More - or how Facebook Changed My Day

  • It's been a long couple of days.  I've been hit with bout of insomnia like I've never experienced before.  I have insomnia often, but usually it just means that regardless of what time I crawl into bed, it's 2 or 3am before I'm finally able to crash out, but this time was different and I've had no sleep at all.  The fi[...]
  • Just Say It

  • You'll excuse me if I self-indulge for a minute or two. Sometimes being Lily's mom is hard. Please don't misunderstand, I don't think there is a mother out there who can't say that it is a hard job - balancing responsibilities, conflicting needs, finding a balance that keeps you sane while still meeting the needs of t[...]