February is Heart Month – the month that celebrates love also takes a little time to bring awareness about CHD (Congential Heart Disease) to the forefront of people’s minds. Yesterday my Facebook page, twitter feed and blogrolls were all filled with people sharing their experiences – hopeful experiences. I struggled all day trying to figure …
Fierce
If, fifteen years ago, you had told me that I would be able to sit in a room, reading medical records and understand the following sentence, “loss of grey-white differentiation consistent with Hypoxic Ischemic Encephalopthy; insult occurring in the bilateral parietal, temporal, occipital lobes and occurring the the posterior frontal lobe along the vertex”, I …
Happy Heart, Happy Birthday
Cardiology came and went. They sedated, they scanned, they saw, they pronounced her heart strong and her lung pressures stable. They said to come back in a year. It was music to our ears. There was a moment, one breath-holding, heart stopping moment. While Lily was conked out from the sedation (which was rare in …
Which Mom Am I?
When your child has a special need, regardless of whether it’s a developmental disability or a medically based complexity, parents want to champion these issues: to bring their knowledge and experiences to people so that we can educate and bring awareness to what makes our child special. My problem is that I don’t know where …
Lily’s New Wheels
There are certain specialists we see at Sick Kids that leave us less stressed than others. I like to think of these as “maintenance” appointments – doctor’s we need to see because there was an issue in the past or things that are just part of life and require some follow-up: our regular pediatrician, opthamology and …
A Great December
Guys, it’s a good thing that it’s almost the new year, because I totally need to make a resolution that I’m going to update you all a lot more often. Lately I’ve just been so busy that by the time I can sit down and write a post so many things have happened and I’m …