Tags archives: Cardiac Arrest

  • Lost

  • "The truth is, there are lots of times where I feel completely lost in how to feel about all of this, in how to prepare, in how to parent, in how to process experiences, in how to advocate." – Kelle Hampton There are some people who think we should have this all figured out; that because we chose adoption, because we [...]
  • Sick Kids Mom PTSD

  • We're back home and on the mend. It was a bit of a tough transistion, getting nursing care arranged for both at home and at school and so Lily was away from school longer than we had hoped, but she went back late last week and has been as happy as they come ever since. She's had some rough moments where she has to ride[...]
  • Worried Voice vs. Mamma Voice

  • So, Lily  has had a walker since she began junior kindergarten last year. We've had some success with it, mostly because the staff at her school are incredible and just keep pushing her.  She would take a few steps but for the most part would just use both feet at the same time to push herself forward.  She could only [...]
  • The Faces of PVS

  • The moment that Lily's surgeon started talking is captured like a snapshot in my mind.  For me, it's the line in the sand that defined "before" and "after".  We, unlike so many parents of children with Congenital Heart Defects (CHD), knew of Lily's original heart issues, AVSD and Coarctation of Aorta; we were prepared [...]
  • A Dirty Shoe

  • "It looks like she may have stepped in gum, or play-doh." We've been harbouring a little secret around here.  Our little bum-scooting maniac is showing signs that she's no longer content with just having access to the things directly in front of her on the floor.  She's decided that the things on the other side of t[...]
  • #500 for 5

  • 5 years.  Since just after that horrible day 4 years ago, the goal has been 5 years.  "Take her home and grow her," they told us, "if the day comes when she needs a heart-lung transplant, the success rate improves dramatically once a child is 5."  It seemed impossible.  5 years felt more like a lifetime, especially whe[...]
  • Cuter on TV

  • I didn't think it was possible, but Lily may be even cuter on TV, but that may also be a proud momma speaking. I can't believe it actually aired and that I didn't nervous giggle even once.  Watching the segment, there's a moment where I could sense it coming but I was able to hold it back and I think I may be more p[...]
  • The Amazing Constant Chaos

  • When you parent a child with special needs and any type of medical needs, you often hear people say, "I don't know how you do it."  Most of the time I just shrug it off because I don't always know either, but as a parent, you don't think about it, you just do it. However, in the past two weeks, I've started to quest[...]
  • Saying Thank You

  • On July 14, 2011 at 7:30am, 2 men became our family’s heroes. From that moment on it seemed incredible to me that we had barely spoken to them, didn’t know their names and never had the chance to say thank you. How was it possible that there were people just out there that had played such a huge role in our lives and w[...]
  • Million Dollar Day

  • There are absolutely no words to describe the day we had...but of course I'm going to try. Today was Lily's playground build - an incredible gift granted to her by the Million Dollar Smiles foundation and sponsored by the Bank of Montreal.  The volunteers were all in place by 9am this morning, and after a few wo[...]
  • Time Heals

  • Time is a funny thing.  For the past few weeks Jess and I have been constantly reminding ourselves that "time heals" - we knew that we just needed to give Lily and her body some time to get over this bout of...well, whatever it was.  And of course we were right, but those weeks felt long and it was sometimes hard to ke[...]
  • Today is Hard

  • I'm walking around in a fog - or worse, on the constant edge of tears.  Every time I allow myself time to just stop I end up back there and I can't tear myself away.  I know that I've joked in the past about my PTSD state post Lily's cardiac arrest.  I know that I've talked about how I feel like a failure to her and to[...]