Tags archives: Brain Injury

  • Lost

  • "The truth is, there are lots of times where I feel completely lost in how to feel about all of this, in how to prepare, in how to parent, in how to process experiences, in how to advocate." – Kelle Hampton There are some people who think we should have this all figured out; that because we chose adoption, because we [...]
  • Worried Voice vs. Mamma Voice

  • So, Lily  has had a walker since she began junior kindergarten last year. We've had some success with it, mostly because the staff at her school are incredible and just keep pushing her.  She would take a few steps but for the most part would just use both feet at the same time to push herself forward.  She could only [...]
  • A Dirty Shoe

  • "It looks like she may have stepped in gum, or play-doh." We've been harbouring a little secret around here.  Our little bum-scooting maniac is showing signs that she's no longer content with just having access to the things directly in front of her on the floor.  She's decided that the things on the other side of t[...]
  • #500 for 5

  • 5 years.  Since just after that horrible day 4 years ago, the goal has been 5 years.  "Take her home and grow her," they told us, "if the day comes when she needs a heart-lung transplant, the success rate improves dramatically once a child is 5."  It seemed impossible.  5 years felt more like a lifetime, especially whe[...]
  • The Amazing Constant Chaos

  • When you parent a child with special needs and any type of medical needs, you often hear people say, "I don't know how you do it."  Most of the time I just shrug it off because I don't always know either, but as a parent, you don't think about it, you just do it. However, in the past two weeks, I've started to quest[...]
  • Saying Thank You

  • On July 14, 2011 at 7:30am, 2 men became our family’s heroes. From that moment on it seemed incredible to me that we had barely spoken to them, didn’t know their names and never had the chance to say thank you. How was it possible that there were people just out there that had played such a huge role in our lives and w[...]
  • Ask Away

  • So clearly my attempt at {31 for 21} has been a failure of epic proportions.  I'm not sure when we October ran past me, but it did and suddenly I've woken up and there are only 13 days left in this month.  I had started with, what I thought was, a great idea - taking single posts to talk about the peices of Lily's life[...]
  • Today is Hard

  • I'm walking around in a fog - or worse, on the constant edge of tears.  Every time I allow myself time to just stop I end up back there and I can't tear myself away.  I know that I've joked in the past about my PTSD state post Lily's cardiac arrest.  I know that I've talked about how I feel like a failure to her and to[...]
  • Great Big Huge Leaps

  • The last couple of weeks have shown some huge developments in Lily's developmental skills.  One of our new therapists from Holland Bloorview has just been this incredible ray of sunshine in our lives and it would be easy to chart Lily's developments alongside Catherine's visits.  We've been lucky to have some incredibl[...]
  • Fierce

  • If, fifteen years ago, you had told me that I would be able to sit in a room, reading medical records and understand the following sentence, "loss of grey-white differentiation consistent with Hypoxic Ischemic Encephalopthy; insult occurring in the bilateral parietal, temporal, occipital lobes and occurring the the pos[...]
  • Looking Forward

  • The snow just keeps piling up and all I want to do is bury my body under 6 layers of blankets and my head in an amazing book, but already the sounds of September and school are starting to call. A little background here.  When Lily was first placed with us, we had found an amazing preschool, here in Toronto, that woul[...]
  • Which Mom Am I?

  • When your child has a special need, regardless of whether it's a developmental disability or a medically based complexity, parents want to champion these issues: to bring their knowledge and experiences to people so that we can educate and bring awareness to what makes our child special.  My problem is that I don't kno[...]