Tags archives: Birthday

  • The Day of Thinks

  • Some part of me thought that we wouldn't get here.  I wouldn't let myself actually look this far into the future and see this day.  This 5 year old girl standing before me, strong and growing and shining with light, I didn't think I'd see her. It's given me new hope, if we can reach 5, which seemed so far away and i[...]
  • #500 for 5

  • 5 years.  Since just after that horrible day 4 years ago, the goal has been 5 years.  "Take her home and grow her," they told us, "if the day comes when she needs a heart-lung transplant, the success rate improves dramatically once a child is 5."  It seemed impossible.  5 years felt more like a lifetime, especially whe[...]
  • Into the New Year

  • The miracle of Christmas may just be that we made it through December.  Between our big cardiology visit, Lily's birthday, a giant ice storm that made our power go away, Christmas and New Years, I'm honestly just a little happy that we are into January and a fresh start at a fresh year. Don't take that last paragrap[...]
  • Happy Heart, Happy Birthday

  • Cardiology came and went.  They sedated, they scanned, they saw, they pronounced her heart strong and her lung pressures stable.  They said to come back in a year.  It was music to our ears. There was a moment, one breath-holding, heart stopping moment.  While Lily was conked out from the sedation (which was rare in[...]
  • A Great December

  • Guys, it's a good thing that it's almost the new year, because I totally need to make a resolution that I'm going to update you all a lot more often.  Lately I've just been so busy that by the time I can sit down and write a post so many things have happened and I'm scared I'm going to forget something. First - it was[...]
  • Come closer, I have a secret....

  • I wasn't always this big you know? I started out pretty tiny - 1.78kg to be exact (that's 3.9 pounds).  But over the last year, I have grown bigger and stronger with every day and every week and every month.  And now, today is my first birthday and even though there were some sad times and scary times, I think that my [...]
  • Kind of a Big Deal

  • For the last few days there has been a flurry of excitement going on at our house.  I didn't quite understand what was going on: we were shopping a lot, the mom's were cleaning a lot, and then yesterday Mommy was going to town making all of these donuts.  Then today, I had to get up a little early, have a bath and put [...]