To Witness Love

You might think, from the title, that I’m about to tell you how incredible it was to witness the birth of my new niece, Penelope, this week.  You’re not entirely wrong.  Being allowed to be in that room, to share this moment with my sister – my other half – is beyond anything I can …

Sick Kids Mom PTSD

We’re back home and on the mend. It was a bit of a tough transistion, getting nursing care arranged for both at home and at school and so Lily was away from school longer than we had hoped, but she went back late last week and has been as happy as they come ever since. …

Home, Second Home

It’s been a pretty crazy three days around our house.  So let me tell you a little story about what I call, “When There Is One Too Many Holes”. Once upon a time… On Thursday past, Jess and I noticed that the area around Lily’s g-tube stoma was looking rather angry.  It was red and …

Holding Tight to the Love

One of the thoughts that I push aside most often is how Lily’s relationships will change as her friends get older.  We just spent a wonderful weekend away with some friends and one of my favourite parts was watching their son interact with Lily.  He has loved her since the minute she entered our lives …

Be A Goal Digger

Next week will be the culmination of the last few months for me.  There have been things going on behind the scenes – nothing with Lily, just some time spent reflecting on how to become the person that I see in myself versus the person that I portray to the rest of the world.  It’s …

Keep Love Alive

“T’is the season when the saints can employ us to spread the news about peace and to keep love alive.” 10 points to you if you knew that was from A Muppets Christmas Carol, but another 10 points if you know that for all of the Christmas songs and carols out there, this is the …