Have we ever known Lily to just let a happy event happen without throwing in her own little wrench? We went to Disney World and she pulled out her own g-tube for the first time, this time she had a playground donated and she got an infection around her stoma! We actually felt really bad …
There are absolutely no words to describe the day we had…but of course I’m going to try. Today was Lily’s playground build – an incredible gift granted to her by the Million Dollar Smiles foundation and sponsored by the Bank of Montreal. The volunteers were all in place by 9am this morning, and after a …
5 years ago. My sister’s first pregnancy was like a stab in the heart. Not intentionally of course, but it seemed to come so soon after I lost Ben, that I didn’t know how I would handle it. For the first while, it was okay, she could tell me about her experiences and I could …
I’ve been taking part in a Summer Disability Blog Hop Series. The entry I wrote about the challenges we face when Lily is sick was part of that. This weeks post is asking about the Comforts and Connections that we make and as I started to write a new post, I realized that I had …
Time is a funny thing. For the past few weeks Jess and I have been constantly reminding ourselves that “time heals” – we knew that we just needed to give Lily and her body some time to get over this bout of…well, whatever it was. And of course we were right, but those weeks felt …
I find one of the most difficult challenges about parenting a child with special needs is trying to find a work/life balance in a world where these 2 things don’t always want to play nicely together. I’m incredibly fortunate that my job offers flexible hours and it is a benefit that I value over any …